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After the movers left, Preston’s blinkies hit even worse. Drool dribbled off his chin and onto his T-shirt. Milly, who was watching him while Ana packed up the last things, sensed a bigger seizure building. She fanned Preston, hoping to calm the blinking.
Sydney tries to get Preston to drink some sweet tea
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Charlotte Dravet’s message to parents is simple: Don’t move.
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“In a way,” he told Ana, “it’s an uncontrolled experiment. Which I don’t necessarily like. But we are pressed into this circumstance.”
May 12 Preston spits out his seizure medications, which were mixed with sweet tea. He took the first few squirts easily, but as more of the undissolved pills filled the syringe, the taste and texture became much worse. Preston’s meds have been masked in everything imaginable — sweets, ice cream, whipped cream, ranch dressing — which he eats on almost everything. But all attempts are less and less effective.
Preston helps unload the trailer
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He leans in to give her a kiss on the cheek. A maroon line on the computer screen jumps to life.
“It’s been a constant struggle of trying to limit the number of seizures he has,” Greenwood said of Preston, who at age 1 started as a patient of Greenwood’s. “We have tried literally everything.”
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Slowly working his way through the potatoes, Preston’s hands stopped and his eyelids flickered for a few seconds before popping back open. The first seizure of the day had come and gone.
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The doctors relied on parents to report how much CBD reduced seizures. And that opened the door for the study’s two most intriguing findings.
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Cannabidiol (CBD) is one of the many chemicals in marijuana. Recent publicity about children who suffer from seizures benefitting from oil extracted from marijuana that has almost no THC has set off a wave of legislation like never seen before. Now state reps can favor marijuana without the fear of people getting high from it. This explains why so many Republicans are sponsoring these bills.
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