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But, when parents such as Ana Watson arrive with little more than a desperately sick child and a hope to make it better, they walk into uncharted territory. They become part of a medical experiment that plays out in living rooms, not doctors’ offices.
Sadly at this point most of us are unable to buy strains like Charlotte’s Web due to cannabis prohibition. Yet, medical cannabis has been growing quickly as a movement, and so if you live in a state or country where medical cannabis has been legalized it may be possible to get CBD made from cannabis flowers. However until the prohibition of cannabis finally ends it will remain a challenge for most of us.
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Related: Every patient’s Dravet syndrome is a little different
What is CBD?
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The few, small studies of its efficacy, though, are preliminary and even disputed. Federal laws against marijuana have hampered research on CBD for the past four decades. As a result, states have increasingly passed their own laws legalizing CBD, based on little more than stories such as Charlotte Figi’s and the hopes of families following in her path.
Slowly working his way through the potatoes, Preston’s hands stopped and his eyelids flickered for a few seconds before popping back open. The first seizure of the day had come and gone.
“We don’t make recommendations about the marijuana therapy because we don’t have the information to do that,” said Dr. Amy Brooks-Kayal, the head of pediatric neurology at Children’s. “We feel very strongly that we need to act on good medical and scientific evidence, and that doesn’t exist.”
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July 7 Preston, curious about everything, watches his new pediatrician, Dr. Edward Maynard, adding notes from the 12-year-old’s first visit and examination at Iron Horse Pediatrics in Colorado Springs. Doctors, hospitals, nurses and tests have been a part of Preston’s life since he was diagnosed with Dravet syndrome as a baby.
Also known as cannabis oil or cannabidiol, industrial hemp oil has been growing in popularity as a self-treatment option for many people suffering from emotional or physical discomfort. While sometimes compared to medical marijuana, industrial hemp oil is not illegal, nor is it a psychotropic drug. Although cannabidiol is an ingredient in both regular and medical marijuana, the main component, THC, is only present in very small traces in cannabidiol cannabis oil. While some people may come across industrial hemp oil by looking for marijuana oil for sale, marijuana CBD is not the same. As mentioned, industrial hemp oil is not a drug, nor does it contain enough THC to produce a psychotropic effect.
A family photograph of Preston as a baby
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Her bookshelf at home charted the journey and spoke to her struggle. First came “What to Expect in the First Year.” Then “Keeping Faith.” Then “Delmar’s Drug Reference for Health Care Professionals.” Then “Three Weeks to Say Goodbye.”
After Preston’s birth, the doctors told Ana that his strange leg twitches were common — the result of underdeveloped musles. It was three months later that she learned the doctors were wrong.
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Turn the page, and there’s a picture of Preston in a white onesie. Then a picture of Preston sitting in a kid-sized Jeep.
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