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Preston’s breaths grew quieter.
Turn the page, and there’s a picture of Preston in a white onesie. Then a picture of Preston sitting in a kid-sized Jeep.
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Ana’s mom, Milly, stirs more medicine into ice cream and brings it over. But Preston won’t eat.
The doctor continues down the list of anti-epilepsy medications, collecting the medical history of Ana’s 12-year-old son, Preston, whose seizures cause such unrelenting brain damage that he functions at the level of a 2-year-old. The doctor ticks through 13 different medicines, but Preston has already tried each one, to little effect.
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While Preston played later in the backyard August sunshine, his eyes seemed to roar.
“It’s a boy!” the sticker on the page proclaims.
Even as families flock to the state, few doctors here condone the use of marijuana to treat seizures. And that means the very people on whom families depend for medical advice are often silent when it comes to critical questions about the new treatment.
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“Oma” — Preston’s grandmother Milly Raynor
Related: Epilepsy drug development is a sparse field
“We don’t make recommendations”
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Even as families flock to the state, few doctors here condone the use of marijuana to treat seizures. And that means the very people on whom families depend for medical advice are often silent when it comes to critical questions about the new treatment.
May 9 Preston’s at-home nurse Sheila Wall keeps watch after a sudden cloudburst while picking strawberries. Excitement and the quick drop in temperature brought on almost nonstop myoclonic seizures that Preston’s mother, Ana, fears may turn into a full grand mal seizure before they get home.
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“Beautiful,” another wrote. “So beautiful.”
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Graphic: Inside look at Preston’s fight
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