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Ana’s mom, Milly, stirs more medicine into ice cream and brings it over. But Preston won’t eat.
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An absent seizure
A family photograph of Preston as a baby.
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There are the grand mals, known clinically as tonic-clonic seizures, that are full of violent convulsing that can last minutes. Preston falls into one about once a week. But much more common are the little eye flutters. In medical terms, they are called myoclonic seizures. Ana calls them “blinkies.” They look as though Preston is on the verge of sneezing.
Preston pulls back toward the lunchroom
“No. Not yet.”
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This time, she walks to him without a smile. She leads him into the bathroom and pulls down his diaper. She muscles him close.
The result of that one-sided conversation, though, is that parents who give CBD to their children must turn to one another and their medical marijuana providers for help. Facebook has become a crowd-sourced doctor’s office. Colorado’s sometimes ragtag community of medical marijuana growers acts as a de facto human services agency.
Leaving Children’s after the first visit, Ana still has questions about CBD. But doctors there have set up several new appointments to address other aspects of Preston’s care. He will soon have a feeding tube inserted into his stomach, allowing Ana to give him food and medicine consistently. She’ll take him to get fitted for a new helmet to protect him in falls.
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There is, however, a further grey area to consider. In certain countries of the world – Canada, for instance, and several countries in the EU – cannabis plants which have a very low THC content are considered to be hemp. This percentage is usually either 0.2% or 0.3%. This means that for very carefully grown cannabis plants CBD can be obtained from cannabis flowers or “buds”.
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Greenwood had been cautiously supportive of Ana’s move, in part because it preserved some of his input into Preston’s care. Tell a family no when they’re on the trail of hope, and they’ll leave you behind. For all of the parents asking him about moving to Colorado — Ana was not the first — Greenwood had told them the same thing: There’s no hard evidence it works, but there’s no hard evidence it’s causing harm, either.
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So, the entire day after that first dose, Ana watched Preston like a poker player looking for a tell.
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