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But, when parents such as Ana Watson arrive with little more than a desperately sick child and a hope to make it better, they walk into uncharted territory. They become part of a medical experiment that plays out in living rooms, not doctors’ offices.
The hospital didn’t see any improvement in the before-and-after EEGs of four kids whose seizures appeared to lessen significantly. That may have been due to something called “electroclinical dissociation,” where the seizure still occurs but its outward indicators disappear. It also might be that parents can pick up on smaller improvements than an EEG can, said Dr. Kevin Chapman, a pediatric neurologist at Children’s who was a co-author on the study.
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June 30 Ana Watson blocks the door to keep Preston inside during an interview to evaluate the type and amount of care he will need in Colorado. Jennifer White, a clinical supervising nurse with the Certified Nursing Assistant division, and Mike Quintana, account manager with MGA Home Healthcare, base their assessment on state guidelines to provide for Preston’s medical needs.
July 24 Preston gently touches his friend Hailey McGuire as she rests at his home. Hailey, Tami King’s daughter, also has Dravet syndrome. King had stopped at Watson’s home for the comfort of a friend after a doctor’s visit at which Hailey had her seventh grand mal seizure since 2 a.m. and is “still in seizure mode” as Tami calls it. There is a connection between Dravet mothers, but there also seems to be a deep understanding between Dravet kids.
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Preston’s grandmother supports his head
Hi CBD is owned by Cannabis Sativa Inc a publicly traded company focused on branding and marketing high quality legal cannabis products including CBD oil. As these products exist in concept only, there is no pricing information available. What makes Hi CBD products innovative is that they are one of few companies focused on bioavailability through water solubility.
“Keppra often causes behavioral issues,” the doctor responds.
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“OK,” Ana said, “One more minute.”
“It smells like marijuana,” she laughed. “I didn’t think it would.”
“It was fun, though, wasn’t it, Preston?”
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Anyone looking at CBD hemp oil is quite aware it is a premium product because of the price. When Hemp Meds first started selling CBD oil it was nearly double the current price. Hemp Meds has always shown the desire to make CBD oil as accessible to the people who need it as possible.
Some epilepsies respond well to generalized anti-seizure drugs. But the specific genetic mutation of each Dravet patient is different, meaning what works for some won’t work for others. Preston has at least four different kinds of seizure types, and they varied in severity and frequency as he grew older.
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CW Botanicals (charlotte’s web) CBD oil products are high quality and cost effective ranging in price from $50-$995. CW Botanicals was created by the same people who were featured in CNN’s Weed special who operate the Realm of Caring organization in Colorado.
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Overall cost varies based on the amount a child takes, which itself varies based on how big the child is. Different providers also charge different prices. For kids using Charlotte’s Web, a typical family spends about $300 a month for CBD oil.
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